Centres of Excellence (COE)
The following are Centers of Excellence for Rare Diseases:
(Patients and Families are requested to visit one of these centers nearest to you and register yourself to avail Treatment)
1) All India Institute of Medical Sciences, New Delhi.
2) Maulana Azad Medical College, New Delhi.
3) Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow.
4) Post Graduate Institute of Medical Education and Research, Chandigarh.
5) Centre for DNA Fingerprinting & Diagnostics, Hyderabad.
6) King Edward Medical Hospital, Mumbai.
7) Institute of Post-Graduate Medical Education and Research, Kolkata.
8) Center for Human Genetics (CHG) with Indira Gandhi Hospital, Bengalur
Activities of the COEs would be as follows:
1) Treatment of rare diseases.
2) Screening – Antenatal, neonatal (specified disorders), High risk screening (both antenatal & in newborns and children)
3) Diagnostics- Cytogenetic, molecular, Metabolic.
4) Prevention by prenatal screening & diagnosis ,Education & Training at all levels.
5) Research in the area of low cost diagnostics & therapeutics.
Nidan Kendras:
Nidan Kendras have been set up by Department of Biotechnology (DBT)under Unique Methods of Management and treatment of Inherited Disorders (UMMID) project for genetic testing and counseling services. These Nidan Kendras will be performingscreening, genetic testing and counseling for rare diseases. Nidan Kendras possessing the facility for treatment may do so under the guidance and supervision of a COE.
List of Nidan Kendras is given below:
1)Lady Hardinge Medical College (LHMC), Delhi
2)Nizam’s Institute of Medical Sciences (NIMS), Hyderabad, Telangana
3)All India Institute of Medical Sciences (AIIMS), Jodhpur
4)Army Hospital Research & Referral, Delhi
5)Nil Ratan Sircar (NRS) Medical College and Hospital, Kolkata.
Disclaimer- This information is based on the NPRD 2021 and for details your are requested to read full document.