Initiative

Government Initiatives.

 

Delhi launches Mission NEEV for early treatment of infants
 
 
https://health.economictimes.indiatimes.com/news/policy/delhi-launches-mission-neev-for-early-treatment-of-infants/73132199
 
UMMID initiative to tackle inherited genetic diseases of newborn babies

 UMMID initiative aims to create awareness about genetic disorders and establish molecular diagnostics in hospitals. 

 Diet for Life 

https://diet4life.fssai.gov.in/index.html  

https://fssai.gov.in/upload/advisories/2021/06/60dc63950f19cDirection_IEM_30_06_2021.pdf

 

 

Rare Diseases Policy 


Treatment Centers In India (Govt)
Centres of Excellence (COE)
 The  following are Centers of Excellence for Rare Diseases:
(Patients and Families are requested to visit one of these centers nearest to you and register yourself to avail Treatment)
1) All India Institute of Medical Sciences, New Delhi.
2) Maulana Azad Medical College, New Delhi.
3) Sanjay Gandhi Post Graduate Institute of Medical Sciences, Lucknow.
4) Post Graduate Institute of Medical Education and Research, Chandigarh.
5) Centre for DNA Fingerprinting & Diagnostics, Hyderabad.
6) King Edward Medical Hospital, Mumbai.
7) Institute of Post-Graduate Medical Education and Research, Kolkata.
8) Center for Human Genetics (CHG) with Indira Gandhi Hospital, Bengalur
Activities of the COEs would be as follows:
1) Treatment of rare diseases.
2) Screening – Antenatal, neonatal (specified disorders), High risk screening (both antenatal & in newborns and children)
3) Diagnostics- Cytogenetic, molecular, Metabolic.
4) Prevention by prenatal screening & diagnosis ,Education & Training at all levels.
5) Research in the area of low cost diagnostics & therapeutics.
Nidan Kendras:
Nidan Kendras have been set up by Department of Biotechnology (DBT)under Unique Methods of Management and treatment of Inherited Disorders (UMMID) project for genetic testing and counseling services. These Nidan Kendras will be performingscreening, genetic testing and counseling for rare diseases. Nidan Kendras possessing the facility for treatment may do so under the guidance and supervision of a COE.
List of Nidan Kendras is given below:
1)Lady Hardinge Medical College (LHMC), Delhi
2)Nizam’s Institute of Medical Sciences (NIMS), Hyderabad, Telangana
3)All India Institute of Medical Sciences (AIIMS), Jodhpur
4)Army Hospital Research & Referral, Delhi
5)Nil Ratan Sircar (NRS) Medical College and Hospital, Kolkata.
Disclaimer- This information is based on the NPRD 2021 and for details your are requested to read full document.
Source -https://main.mohfw.gov.in/sites/default/files/Final%20NPRD%2C%202021.pdf

Neonatal screening Programme

Government Medical College &Hospital Chandigarh 

https://gmch.gov.in/Genetic%20Centre/gc.htm

 

SHALABHAM-
 
COMPREHENSIVE NEWBORN SCREENING PROGRAM IN KERALA
https://nhm.gov.in/New_Updates.../Shalabham_Hridyam_Kerala.pptx

 Newborn Screening (NBS) Project at Departments of Genetics and Endocrinology, SGPGIMS, Lucknow

 
In coordination with Genetics department, a newborn screening program for congenital hypothyroidism and congenital adrenal hyperplasia is running, under the National Health Mission, catering to all births in 7 government hospitals in and around Lucknow.
 
New Born Screening: Goa 
  • A scheme has been introduced by the Govt. of Goa on 14th June 2008 to screen all newborns delivered in the Govt. hospitals for any inborn errors of metabolism. 
  • The Goa Newborn Screening Program 3 Year Review 2008 – 2011
  • The Goa government will restart newborn baby screening facility in the state under National Rural Health Mission,
     
    Vellore
    The Institute of Child Health (ICH), Egmore, is to screen over 77,000 newborns in Vellore for two rare diseases, Congenital Hypothyroidism and Congenital Hyperplasia Hyperglycemia to start early treatment with the CM Edappadi K Palaniswami inaugurating the Rs 1 crore pilot project during commemoration of 50th year of the hospital on Wednesday.
     
     
    Jaipur
     
    After newborn screening lab, JK Lone hospital to screen blood disorders
     
    Mumbai
    Municipal corporation of Greater Mumbai has started New born sceering 

    CH,CAH , G6PD, HB Variants

    Newborn Babies To Seniors:  Govt Healthcare Schemes You Need to Know
    The Ministry of Health and Family Welfare of the Government of India has introduced 
    several 
    healthcare schemes over the years, catering to all sections of the population. Launched 
    under the National Health Mission, these schemes aim to make healthcare affordable and 
    accessible to all, aligning with Sustainable Development Goal 3 (Good Health and Well-
    Being).
     
    1. Ayushman Bharat Yojana (ABY) / Pradhan Mantri Jan Arogya Yojana (PMJAY) / National 
    Health Protection Scheme
    2. Pradhan Mantri Bhartiya Janaushadhi Pariyojana (PMBJP)
    3. Rashtriya Arogya Nidhi (RAN)
    4. Reproductive, Maternal, Newborn, Child and Adolescent Health (RMNCH+A) 
    5. Janani Shishu Suraksha Karyakaram (JSSK)
     
    https://www.thebetterindia.com/209078/health-schemes-ayushman-bharat-cashless-treatment-subsidised-medicines-government-india-say143/
     
 
 
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