Newsletter

Recent Activates

 
 Recent Activates from MERDIndia
 
In April  2019: 
 
1)MERDIndia gave informative support to more than 20 people regarding IEM and NBS 
 
 
2)New Delhi - Participated RGAL (Rare Global Advocacy Leaders ) Meeting on 16th April 2019  @ Four point Sheraton. 
 
New Delhi -Participated as a  panelist on Seventh International Conference on Rare and 
Undiagnosed Diseases  for Session 4 Role of Patients group – Awareness and Education on 
day 1, April 13th 2019 at Hotel Leela Ambience, Ambience Island, National Highway, 
Gurugram Delhi NCR, India.
 jaipur -participated  On the occasion of World Autism Awareness Day 2 april,  special children from different institutions on Albert Hall gave handsome presentations. In order to bring awareness of autism, this program was organized by the Department of Archeology and Museum, Rajasthan Government in collaboration with the D-Naj Institute
 

Update

Updates:
Happy News
 
Rainbow bed sheet  lig .. 
The highlight of the new ward is the newborn-screening corne .. 
 
Read more at:

 
 
Merdindia in news 
 
 We aim to spread awareness about these rare diseases so that more children can be 
screened on time and benefit through early intervention. We have found that lack of 
awareness is a major concern in India. The screening of new born babies should also be 
made compulsory across all the states in the country as early diagnoses can make a huge 
difference. Vikas Bhatia, MERD India Founder
 
We are also raising demands for better medical facilities and insurance options for 
patients. He added.
 
 
update 
 
Newborn screening will be made mandatory
 
Other than neonatal care and comprehensive primary care for children, the Health 
Department has plans to give importance to infant mental health also, she said.
 
will-be-made-mandatory-1943723.html
 
Please make  our country a better and safer place for Newborns.
 

 

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