Newsletter

Recent Activates

Recent Activates from MERDIndia
 
 
In April 2018
1-MERDIndia gave informative support to more than 15 people regarding IEM and NBS
2=Host and organized 3rd National Patients Advocacy Group Leader Meeting (PAG Meeting) called  by  ORDI - (Organization for Rare Disease India)on 29th April 2018 jaipu to discussed  National Rare disease policy The recent announcement of “National Rare disease policy is a ray of hope for Rare disease community in India.  The real benefits is when it is implemented in true +spirit in the state. There is a need for deeper understanding on how best it can be implemented 
in and what are the possible challenges. in this meet 8 parents group with 19 people well attend the discussion , Dr arun sing from RBSK government of India  was the key person in this meet 

Update

 
Happy News
 
Newborns to be screened for two diseases from April

Source-http://www.thehindu.com/todays-paper/tp-national/tp-
tamilnadu/newborns-to-be-screened-for-two-diseases-from april/article23339575.ece

Insurance Policy- Persons Having Genetic Disorders Cant Be Discriminated: 
Delhi HC.
..
Read more at: http://www.livelaw.in/breaking-insurance-policy-persons-genetic-disorders-cant-discriminated-delhi-hc-read-judgment/#.WpS9Lyd4_Fw.whatsapp
 
 
 
Please make  our country a better and safer place for Newborns.
 

 

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