Recent Activates from MERDIndia

in Jan 2020

1)MERDIndia gave informative support to more than 30 people regarding IEM and NBS
2) Jaipur-Participated on workshop and awareness program on Rare disease and LSD organized by
Lysosomal Storage Disorders Support Society (LSDSS) and Santokba Durlabhji Memorial Hospital (SDMH)
Jaipur on 25 Jan 2020 AT auditorium SDMH .
New Delhi - Participated- Foundation Ceremony of MISSION NEEV(Neonatal Early Evaluation Vision ) at
Auditorium , Maulana Azad Medical College On 6 January,2020

IMPORTANT

There Rare Disease Day Celebration at Lucknow, To celebrate the positive developments in
the field of rare diseases and create
awareness about them, the department of Medical Genetics, Sanjay Gandhi Postgraduate
Institute of Medical Sciences, Lucknow plans to hold a program on 29th February 2020 in
collaboration with Lucknow Chapters of Indian Academy of Pediatrics (IAP) and National
Neonatology Forum. MERD India also will be
participating in the program. We request participation of pediatricians, obstetricians,
families of patients and policy makers.
Let us make our best efforts not to miss genetic disorders as though rare the
disorders may be treatable or the treatment may be round the corner!
Program
Venue: Telemedicine hall, SGPGIMS, Lucknow
12PM TO 5 PM
29th February 2020,Please reserve your dates. All expenses to be born personally.



Also, Check out HAPPY NEWS from  Delhi

Delhi launches Mission NEEV for early treatment of infants

https://health.economictimes.indiatimes.com/news/policy/delhi-launches-mission-neev-for-early-
treatment-of-infants/73132199

Very Very Important
Government of India Issued
Rare Diseases policy draft
https://mohfw.gov.in/newshighlights/national-policy-rare-diseases-2020

kindly see and dont forget to send your input kumar.pranav@nic.in
till 15 Feb 2020.