Newsletter

Recent Activates
 Recent Activates from MERDIndia in March 2021

1)MERDIndia gave informative support to more than 20 people .


Happy News
newborn screening for hearing is being done in all 61 (delivery points) Government hospitals in Kerala
and in most private hospitals, according to Dr Mohammed Asheel, Executive Director, Kerala Social
Security Mission, spoke about the cochlear implant scheme in the state.

If hearing aid does not help, then Cochlear Implant remains the only solution to give children their
hearing. Many people have benefitted from advanced technology of cochlear implants and are able to lead
normal lives. But unfortunately, there are many more who do not get help on time and live on with
hearing issues.

Around 1200 children have been operated under the Cochlear Implant Scheme in Kerala in the last 8
years. It is amazing to see how the lives of so many children in our state are being transformed.

https://www.thehealthsite.com/diseases-conditions/hearing-screening-for-newborns-should-be-made-
compulsory-in-india-experts-799483/

CDFD opens lab for pediatric rare genetic disorders in Hyderabad
First-of-its-kind lab will be multi-faceted as the services provided include genome sequencing,
identifying of causal genetic variations
https://www.newindianexpress.com/cities/hyderabad/2021/feb/21/cdfd-opens-lab-for-paediatric-rare-
genetic-disorders-in-hyderabad-2266770.html

 
Long-Awaited Drug for Alkaptonuria (AKU), the First Inborn Error, On the Way to Approval 
in Europe
firstinborn-error-on-the-way-to-approval-in-europe/
 
Life saving Diet 
 
The food regulator, FSSAI, has extended the approval for import of speciality 
foods for IEM (Inborn Errors of Metabolism) and hypoallergenic conditions. FSSAI has 
issued an order in this regard saying that in continuation to the direction issued 
previously in April this year, the import of such food products will be allowed for next 
six months that is till May 1, 2021.
 
The order stated, It has been further decided to allow the import of food for special 
medical purpose i.e., food for Inborn Errors of Metabolism and hypoallergenic conditions, 
as listed (by the FSSAI) for a further period of six months from 02/11/2020 till 
1/05/2021 or till their standards are notified whichever is earlier.
 
However, the imports could only be done through two ports of Delhi and Mumbai, according 
to the order.
 
For better control, the import of such products shall continue to be permitted through 
Delhi and Mumbai Ports only, reads the order. It is pertinent to mention here 
hypoallergenics-import-till-may-1-61414
 




Hearing screening should be mandatory in our country

http://ibgnews.com/2020/09/27/more-than-one-lakh-deaf-children-born-every-year-in-india/


Chennai Boy Undergoes First of Its Kind Living Donor Liver Transplant in India for Rare Metabolic Disease

We sincerely appeal to you FOR COVID-19 updates, if required, can be retrieved through
Government of India official link-or the AarogyaSetu App.
Useful informative link:https://www.covid19india.org/
 
 


 

Update
 Also, Check out 
 
Amidst corona, two-year-old Guj girl gets liver transplant
Hirva is the youngest recipient of such transplant in Gujarat so far.
Her mother, who furnished a part of her organ for her daughter, was discharged on Tuesday, while the daughter will get discharged 8-10 days later, doctors said.
We replaced the entire damaged liver of Hirva with 230 grams portion (20 per cent) of left lateral portion of her mother liver. Both the mother and daughter are absolutely fine. The mother was discharged today while the operated baby will still have to be hospitalized for another 8 to 10 days. Hirva will now lead a normal and healthy life just like any other kid, said surgeon Dr Anand Khakhar.
 

Please make  our country a better and safer place for Newborns.

 

 
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