1-MERDIndia gave informative support to more than 15 people regarding IEM and NBS

2=Host and organized 3rd National Patients Advocacy Group Leader Meeting (PAG Meeting) called  by  ORDI - (Organization for Rare Disease India)on 29th April 2018 jaipur  to discussed  National Rare disease policy The recent announcement of “National Rare disease policy is a ray of hope for Rare disease community in India.  The real benefits is when it is implemented in true +spirit in the state. There is a need for deeper understanding on how best it can be implemented 

in and what are the possible challenges. in this meet 8 parents group with 19 people well attend the discussion , Dr arun sing from RBSK government of India  was the key person in this meet