Recent Activates

Recent Activates from MERDIndia  

Recent Activates from MERDIndia in June 2020

1)MERDIndia gave informative support to more than 20 people regarding IEM and NBS.

2)No activities were conducted in June  due COVID-19   

We salute the frontline workers in the COVID19 pandemic who are doing a tremendous job, we also appreciate rare disease warriors who even in these difficult times gave support to the parents which was not only informative but also through making life saving diets and medicines available which provided a big help on time. Many rare disease organizations interacted through the webinars conducted by ORDI 

We sincerely appeal to you सरकार के निर्देश का अनुपालन करें.
COVID-19 updates, if required, can be retrieved through Government of India official link or the AarogyaSetu App.
Useful informative link:

Please don't panic, hopefully with our combined efforts we soon win this battle.




 Also, Check out 
Happy News 
Amidst corona, two-year-old Guj girl gets liver transplant
Hirva is the youngest recipient of such transplant in Gujarat so far.
Her mother, who furnished a part of her organ for her daughter, was discharged on Tuesday, while the daughter will get discharged 8-10 days later, doctors said.
We replaced the entire damaged liver of Hirva with 230 grams portion (20 per cent) of left lateral portion of her mother liver. Both the mother and daughter are absolutely fine. The mother was discharged today while the operated baby will still have to be hospitalized for another 8 to 10 days. Hirva will now lead a normal and healthy life just like any other kid, said surgeon Dr Anand Khakhar.
Satisfactory News
To ensure the consistent supply of Food for Special Medical Purposes i.e., food for Inborn Errors of Metabolism (IEM) conditions and hypoallergenic conditions, FSSAI has extended the permission for their import for a further period of six months till Nov 1, 2020 through Delhi and Mumbai ports.

Please make  our country a better and safer place for Newborns.



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