Newsletter

Recent Activates

 
Recent Activates from MERDIndia  

 
 
 
Recent Activates from MERDIndia

in Jan 2020

1)MERDIndia gave informative support to more than 30 people regarding IEM and NBS
2) Jaipur-Participated on workshop and awareness program on Rare disease and LSD organized by
Lysosomal Storage Disorders Support Society (LSDSS) and Santokba Durlabhji Memorial Hospital (SDMH)
Jaipur on 25 Jan 2020 AT auditorium SDMH .
New Delhi - Participated- Foundation Ceremony of MISSION NEEV(Neonatal Early Evaluation Vision ) at
Auditorium , Maulana Azad Medical College On 6 January,2020

IMPORTANT
There Rare Disease Day Celebration at Lucknow, To celebrate the positive developments in
the field of rare diseases and create
awareness about them, the department of Medical Genetics, Sanjay Gandhi Postgraduate
Institute of Medical Sciences, Lucknow plans to hold a program on 29th February 2020 in
collaboration with Lucknow Chapters of Indian Academy of Pediatrics (IAP) and National
Neonatology Forum. MERD India also will be
participating in the program. We request participation of pediatricians, obstetricians,
families of patients and policy makers.
Let us make our best efforts not to miss genetic disorders as though rare the
disorders may be treatable or the treatment may be round the corner!
Program
Venue: Telemedicine hall, SGPGIMS, Lucknow
12PM TO 5 PM
29th February 2020,Please reserve your dates. All expenses to be born personally.



Also, Check out HAPPY NEWS from  Delhi

Delhi launches Mission NEEV for early treatment of infants

https://health.economictimes.indiatimes.com/news/policy/delhi-launches-mission-neev-for-early-
treatment-of-infants/73132199

Very Very Important
Government of India Issued
Rare Diseases policy draft
https://mohfw.gov.in/newshighlights/national-policy-rare-diseases-2020

kindly see and dont forget to send your input kumar.pranav@nic.in
till 15 Feb 2020.

 

Update

 
  • Newborn Babies To Seniors: 12 Govt Healthcare Schemes You Need to Know
    The Ministry of Health and Family Welfare of the Government of India has introduced 
    several 
    healthcare schemes over the years, catering to all sections of the population. Launched 
    under the National Health Mission, these schemes aim to make healthcare affordable and 
    accessible to all, aligning with Sustainable Development Goal 3 (Good Health and Well-
    Being).
     
    1. Ayushman Bharat Yojana (ABY) / Pradhan Mantri Jan Arogya Yojana (PMJAY) / National 
    Health 
    Protection Scheme
    2. Pradhan Mantri Bhartiya Janaushadhi Pariyojana (PMBJP)
    3. Rashtriya Arogya Nidhi (RAN)
    4. Reproductive, Maternal, Newborn, Child and Adolescent Health (RMNCH+A) 
    5. Janani Shishu Suraksha Karyakaram (JSSK)
     
    https://www.thebetterindia.com/209078/health-schemes-ayushman-bharat-cashless-treatment-subsidised-medicines-government-india-say143/
     
 
 
 
Please make  our country a better and safer place for Newborns.
 

 

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