Newsletter

Recent Activates

Recent Activates from MERDIndia
 
 Deepawali Greetings to all!

MERDIndia is Proud to announce it's activities that were carried out in the month of October 2018:

1)MERDIndia gave informative support to more than 30 people regarding IEM and NBS

2) Participated in Awareness programme for Rett Syndrome on 14th October, 2018 at 
NIMHANS , Bengaluru.

2)Organized Awareness Program for Rare Disease in Children in association with Surya Hospital Jaipur and Lion Club Adarsh Nagar on 6 October 2018 at Surya Hospital , Jaipur.
Thanks to Dr Deepak Shivpuri , Lion Club Jaipur , Surya Hospital Jaipur, Rett foundation, Delhi for all their  support ,due to which more than 75 people attended the  program.  
 







 

Update

Updates:
 
Brett Lee bats for newborn hearing screening
Former Australian cricketer and Cochlears global hearing ambassador Brett Lee was in 
Mysuru on Friday to raise awareness about Universal Newborn Hearing Screening. He stressed 
the need for early screening and intervention to help children with profound hearing loss.
Addressing mediapersons, he said 466 million people, including 34 million children, suffer 
from hearing loss issues across the world. There is a need to address this problem using 
technology and educating people about implants that can eventually change the life of a 
hearing-impaired person, he said.
https://www.thehindu.com/news/national/karnataka/brett-lee-bats-for-newborn-hearing-
screening/article24897247.ece

Screening for congenital disorders at Chennai hospital
The doctors at Chennai Institute of Child Health and Hospital forChildren in Egmore will 
soon be implementing mandatory screening for congenitalhypothyroidism and adrenal 
hyperplasia.A nationwide study which was conducted by theIndian Council of Medical 
Research (ICMR), showed that more new-bornchildren were being born with congenital 
hypothyroidism or congenital adrenalhyperplasia. Seeing this, we decided to implement 
screeningof the same in new-borns so that we could catch these things early andstart the 
appropriatetreatment ahead of time, said Dr AT Arasar Seeralar ,Director of ICH and State 
Child Health NodalOfficer, to TNM.The ICMR study began in 2008 at select hospitalsin 
various cities around the nation, including Chennai, Delhi, Kolkata, Mumbai and Hyderabad 
aswell as a High Risk Screening Centre forMetabolic Disorders inBengaluru.
Read more: https://www.healthissuesindia.com/2018/07/27/adrenal-hyperplasia-congenital-
hypothyroidism-screening-chennai/

Kerala
A new initiative by the Kerala state government will ensure that all infants born in 
public health facilities will be screened for various developmentaldiseases and birth 
defects within 48 hours of delivery. The universal Comprehensive New-bornScreening (CNS) 
programme will be the first of its kind to belaunched in India.
Read more: https://www.thenewsminute.com/article/kerala-introduce-comprehensive-newborn-
screening-program-detect-birth-defects-82872
Screening of newborns resumes in govt hospitals 
 
Read more at:
hospitals/articleshow/65299208.cms
 
Draft policy: Compulsory genetic screening of pregnant women to curb genetic disorders
pregnant-women-to-curb-genetic-disorders/article24753611.ece
 
Please make  our country a better and safer place for Newborns.
 

 

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