Rare Disease Day   

 Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare and genetic diseases and their families.
1= Rare Disease Day in India was celebrated for the first time in India on February 28th 2010 held at Sir Gangaram Hospital in New Delhi.
2=.2nd Rare Disease Day on 28th February 2011 held at Kamaraj Memorial Hall Chennai ,
3=3rd Rare Disease Day on 29 February 2012 held at Nehru Science Centre, Mumbai,
4=4th  Rare Disease Day  on 28 February 2013 held at  Maulana Azad Medical College, New Delhi.
5=5th Rare Disease day   on 28 February 2014  was celebrated in India at many city like  Bangalore, New Delhi, Mumbai, Chennai, Jaipur, Kolkata, Calicut, Kasangadu, Hyderabad.
6=6th  Rare Diseases Day 28 Feb  2015, Rare Diseases Day  was celebrated  in India in many city like   Jaipur, Delhi, Bangalore, Mannankadu, Hyderabad, Chennai,
7= 7th, Rare Diseases Day 2016  was celebrated  in India in many city like   Jaipur, Delhi, Bangalorecalicut. GUNTUR,CHENNAI .

Source. &

8th Rare Diseases Day Celebrate at Hotel Lords Plaza Jaipur  on 27 Feb 2017 ,12 parents from Jaipur share views together.

 9th  World Rare disease day by observed by   unique symbolic  Race for 7 a mass awareness run/walk on 25 Feb 2018 at Shivaji Park Vijay path Tilak Nagar, Jaipur, Rajasthan, More than 80 people well attented and run/walk for Awareness
 10th Rare Disease Day
1,MERDINDIA support World Rare disease day by organized with lion calub jaipur   unique symbolic  Race for 7 a mass awareness run/walk on 28 Feb 2019 at the Jawahar Circle Garden, Jaipur, Rajasthan, More than 70 people well attended and run/walk for Awareness.
2, MERDINDIA organized also  with IAP bikaner , lion club  adarsh nagar  jaipur and lion clubs bikaner and IEM support  Charitable Trusts   unique symbolic   mass awareness March for rare disease  on  3rd march 2019 from Bhraman Path Sadul Ganj Rd, Shardul Colony, Bikaner,  , More than 125 people  participated  for Awareness. 
 Year -2020
Participated and Support Rare disease Day Organised by  the department of Medical Genetics, Sanjay Gandhi Postgraduate Institute of Medical Sciences, at Telemedicine hall, SGPGIMS on 29 Feb 2020

 year 2021  we observed
आज दुर्लभ रोग का प्रतीक दिवस है
आओ मिल कर शपथ उठायें
इन रोगों की जागरुकता फैलाये
जनजन तक अपनी बात पहुंचाये
कई चेहरो पर मुस्कराहट बिखरायें
कश्ती रहती है हमेशा भंवर में
आओ मिल कर किनारे पहुंचाये
At Seth Anandi Lal Poddar Institute Of Deaf Dumb (सेठ आनंदी लाल पोद्दार मूक बधिर संस्थान)Special education school in Jaipur, Rajasthan Jawahar lal Nehru Road,Near Trimuriti circle, Jaipur, Rajasthan 302004
merdindia foundation gave for 60 children ,Bed sheet, drawing box, Dal and sugar,and fruits and biscuits
YEAR 2022
27 February 2022
We observed rare diseases day at umeed special children school at jaipur with kind support from lion club jaipur Adarsh nagar, more than 40 people along children well attended the program, we provide many items to specially needy children, this was very best program for us. 
YEAR -2023
28th February New Delhi-
Participated in rare disease day celebration organized by Dte.GHS,MoHFW in collaboration with CHEB, AIIMS, MMAMC New Delhi
26th February ASANSOL
Organized Rare Disease Day awareness seminar along with IEM support Charitable Trust,Reborn, IAP Asansol at Odyssey Club Key Speakers Were Dr Anil Jalan, Deppanjna Datta, more than 50 people well attended the seminar.
Participated Race for rare diseases Awareness organized by ORDI, Reborn at Odyssey Club Grounds.
19th February Kochi-Participated in ORDI race for 7, awareness run for rare diseases Awareness in India, few hundred people well attended the run along with children and few patients. 

Awareness Week   

14-20 September is Global Mitochondrial Disease Awareness Week
Across the globe the week will be marked with various educational, fundraising and advocacy efforts all designed to raise awareness about mitochondrial disease..
Having mitochondrial disease is like having a massive power outage within your body.
All cells in the human body have mitochondria. They are the ‘power plants’ that provide the body with all of the energy it needs to walk, talk, laugh, hear, digest food, and breathe.
When a person has mitochondrial disease, it means that the power plants in their cells are not working properly. It also means that they could suffer a ‘power failure’ in the organ systems that sustain life. In some cases, mitochondrial disease is fatal.
Rare Disease Day


Awareness Week


September is Newborn Screening (NBS) Awareness Month

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