Inborn Errors of Metabolism Day (IEM Day ) in India is marked  on the 21 November to raise awareness about IEM diseases that most people will not know of, as well as to improve access to treatment.In Fact that treatment for many IEMS diseases is insufficient, and some peoples quality of life is greatly hindered by inequality, simply because people have never heard of their disease, or do not understand the disease and the patients needs.
Since 2011, MERDIndia has been putting in many  platform to rise awareness about IEMS  AND  informative support to   parents , as well as Co-Ordinating events for IEM Disease Day at  national level.
Inborn Errors of Metabolism (IEM) comprise a group of disorders in which a single gene defect causes a clinically significant block in a metabolic pathway resulting either in accumulation of substrate behind theblock or deficiency of the product. All IEMs are all genetically transmitted typically in an autosomal recessive or X-linked recessive fashion.
MERDINDIA  organized First  IEM DAY  on 21 Nov 2015 at Luminous One Continent Hotel Hyderabad , total 32 people well attended  the event.  
2ND IEMDAY Organized with  Neo Clinic Jaipur &Lions Club Jaipur at on 20th November 2016 at  Neo Clinic Jaipur, Rajasthan ,Inborn Errors of Metabolism Day (IEMDay) in India is marked on the 21 November to raise awareness about IEM and to improve access to treatment. This is an effort in reference to it being held on 20th November.50 people well attend the symposium.
 Organized 3rd IEM Awareness day and 2nd Saved Babies Day Association with Maulana Azad Medical College Delhi and IEM Support Charitable Trust Delhi on 21 November 2017 at Maulana Azad Medical College Delhi .75 people along with 22 parnts well attend the IEM DAY.  
Organized 4th IEM day  on 21 November 2018 at golden tulip hotel with press conference  8 media people along with 10 parents attended Awareness talk about inborn errors of metabolism.   
Organized 5th IEM DAY with support by Nelson Mother and Child Care Hospital , NNF , IAP, on 24th NOV 2019 at Hotel Hardeo Nagpur, Around 80 peoples along with 8 parents well attend the day 
Observed also  Inborn Errors of Metabolism Day with Jaipur parents on 21st November at Hotel park Regent Jaipur  
6th IEM DAY due to covid -19 1n 2020

 MERD India along with IEM Charitable Support Trust Organized Inborn Errors of metabolism Day by webinar, Dr Anil Jalan, Dr Anupam Sibal , Dr Rohit Cariappa, Dr Chaitanya Datar , Dr Priyanshu Mathur, Mrs Geetanjali Kunte Dietitian was the key Speakers ,over 100 people well attend the webinar  

 Recording of the event: 

7th Inborn error of metabolism day 2021
organized Seminar and webinar with IEM support trust and ORD INDIA   at Kolkata  At The Conclave  216, 
Acharya Jagadish Chandra Bose road the key  speaker were Dr Ratna puri ,Dr Arun Mangalik ,Dr Bikramjit 
Das ,Dr Sanjukta Das , Dr Dipanjana Datta , 38 people along with 8 parent present in seminar and 56 
people well attended the webinar. 
8th Inborn Errors Of Metabolism Day 2022
21st November-
Jaipur -observed IEM Day at Mahila Chikitsalaya and provide 60 new woollens to new-borns and discuss
about inborn errors of metabolism disease in child care doctors ,great support by hospital management and
Dr Sunil Gothwal and Dr rinku saini .

20th November
Mysore- organized inborn Errors of metabolism day by seminar support by JSS,IAP, ORDI , IEM support trust
more then 80 people along with 9 parents 4 children well Attend the seminar, Dr Seema Kapoor , Dr rohit
Cariappa , Dr Archana Bilagi ,Dr Deepa Bhatt Were key Speakers
9th Inborn Errors of Metabolism Day 
Merdindia foundation  along with department of Pediatrics devision in Medical Genetics  jipmer pondicherry support by IEM support Charitable Trust Organized IEM day at jipmer pondicherry mini Auditorium on 19th nov 2023
More than 80 people well attended the program We focused to sensitization of Medical students ,
It was great successful seminar and all cradit goes to Dr reena Gulati and her team, 
Key speaker were Dr kuldeep singh from Jodhpur along with Dr Adhishivam ,great blessings by Dr Vikram kate, and Dr Thapa, 
It was best IEM day observed since 2011 
Thank you jipmer pondicherry for support 
 Some facts about IEMS and Genetic Disorders in our country
1= 1 in every 500 to1,000 newborns was observed By Inborn errors of Metabolism 
2=India accounted for a staggering 29 per cent of the global deaths of newborns on their very first day of birth and nearly 40 per cent of neo-natal deaths happening on the first day of birth in India.
3=Experts point out that a lot of work has to be done towards improving newborn health in India as nearly 5-15 per cent of newborns are sick due to metabolic diseases. A major group of these babies is left with irreversible complications of physical and mental impairment and some die, if affected by severe forms of these conditions.
4=Our annual birth rateis 21.76/1000 population. Out of the approximately 25 million new births in India, there are an estimated 1.6 Million babies born with birth defects including about 620,000 with genetic disorders.With no mandatory 
newborn screening at national/governmen tlevels, the country wide burden of genetic disorder sespecially the congenital conditions is huge and still unknown..
5=The newborn health challenge faced by India is bigger than that experienced by any other country. As India makes progress in addressing childhood illnesses, reducing newborn deaths remains a critical challenge, making up a growing 
percentage of child deaths. Today, India accounts for the greatest burden of newborn deaths in the world. An estimated 876,000 newborns die each year in India alone (2011 estimates)  accounting for an estimated 30% of the total global 
burden of neonatal deaths and and a staggering 53% of under-5 deaths in India
6=Out of every 100 babies born in this country annually, 6 to 7 have a birth defect. In Indian context, this would translate to 1.7 million birth defects annually and would account for 9.6 per cent of all newborn deaths.With a large birth cohort of almost 26 million per year, India would account for the largest share of birth defects in the world. This would translate to an estimated 1.7 million babies born with birth effects annually. Birth defects account for 9.6% of all new-born deaths and 4% of under five mortality. Development delays affect at least 10% children. 
7=India is a single country of multiple cultures and genetic traits. The research and data from one state does not necessarily apply to another region. The incidence of CAH is thought to be higher in Southern India; where as incidence of 
G6PD is thought to be highest in Punjab and Gujarat. Thalassemia has its highest incidence in Guajarati,. Disorders mimicking methyl malonic acidemia (MMA) is thought to be higher in vegetarians in south India than in north India. These 
geographical variations and their understandings are very important in planning the health programmes of a country.
Note-The facts provided in this news has been sourced from various websites and articles. By no means we claim to be exhaustive or up-to-date.
Newborn Week    

The National Neonatology Forum, India  in partnership with Government of India organizes the Newborn Week throughout the country from 15th – 21st November every year. The first Newborn Week in the year 2000 was inaugurated by Honourable Prime Minister of India. The NNF, the catalyst force behind this activity celebrates the Newborn Week every year and organizes seminars, workshops, newborn health mela’s and newborn care advocacy & awareness campaigns etc all across the country.

Rare Disease Day


Awareness Week


September is Newborn Screening (NBS) Awareness Month

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