Government Initiatives.


Centre Of Excelence Treating Raredisease

Government of India has identified 11 institutions which are actively managing patients suffering from
rare diseases. These institutes have been designated as Centres of Excellence(CoE).


 Diet for Life


Excellent Benifit 

The Central Government has given full exemption from basic customs duty on all drugs and Food for Special Medical Purposes imported for personal use for treatment of all Rare Diseases listed under the National Policy for Rare Diseases 2021 through a general exemption notification.


Rare Diseases Policy 


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This is the link for UDID card
Very Useful 
The umbrella scheme of Rashtriya Arogya Nidhi (RAN win have three cornponents namely
(i) Rashtriya Arogya Nidhi (RAN)
 (ii) Health Ministers cancer Patients Fund (I{MCPF) and
(iii) Scheme for financial assistance fol patients suffering from specified rare diseases.

Neonatal screening Programme

1-Government Medical College chandigarh 

Annually, the department caters to about 6000-7000 livebirths majority of which are high-risk obstetric referrals. In addition, the department also takes care of sick and preterm neonates referred to the hospital for specialized care. The department runs a neonatal follow-up clinic for high-risk neonates. In collaboration with the Department of Obstetrics & Gynecology and Genetic center, the department provides perinatal counseling for high-risk fetuses. Universal newborn screening is done to screen for common inborn errors of metabolism.

2- SHALABHAM( Kerala)

 Newborn screening program in kerala

 3- SGPGIMS, Lucknow

In coordination with Genetics department, a newborn screening program for congenital hypothyroidism and congenital adrenal hyperplasia is running, under the National Health Mission, catering to all births in 7 government hospitals in and around Lucknow.

4- New Born Screening: Goa 
  • A scheme has been introduced by the Govt. of Goa on 14th June 2008 to screen all newborns delivered in the Govt. hospitals for any inborn errors of metabolism. 
  • The Goa Newborn Screening Program 3 Year Review 2008 – 2011
  • The Goa government will restart newborn baby screening facility in the state under National Rural Health Mission,

    5-Taluk-hospitals in mysuru-to-launch-newborn-screening
    Newborn Babies To Seniors:  Govt Healthcare Schemes You Need to Know
    The Ministry of Health and Family Welfare of the Government of India has introduced 
    healthcare schemes over the years, catering to all sections of the population. Launched 
    under the National Health Mission, these schemes aim to make healthcare affordable and 
    accessible to all, aligning with Sustainable Development Goal 3 (Good Health and Well-
    1. Ayushman Bharat Yojana (ABY) / Pradhan Mantri Jan Arogya Yojana (PMJAY) / National 
    Health Protection Scheme
    2. Pradhan Mantri Bhartiya Janaushadhi Pariyojana (PMBJP)
    3. Rashtriya Arogya Nidhi (RAN)
    4. Reproductive, Maternal, Newborn, Child and Adolescent Health (RMNCH+A) 
    5. Janani Shishu Suraksha Karyakaram (JSSK)

     Please go through 
    myScheme is an Indian Govt website that aims to offer one-stop search and discovery of the Government schemes.
    The platform helps the citizen to find the right Government schemes for them. It also guides on how to apply for different Government schemes. Thus no need to visit multiple Government websites.
    Link -
    The information provided in this Above  has been sourced from various websites and articles. By no means we claim to be exhaustive or up-to-date. 
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