Newsletter

Recent Activates


Recent Activates from MERDIndia In March -2024


1-MERDIndia gave informative support to more than 40 people regarding IEM and NBS and rare

Diseases.

2- Participated in Few Activates
 
30th March 


Coimbatore - Participated in seminar as a speaker on Challenges and Bottlenecks in Genetic Counseling
Education/Training in India at Hotel gokulam park , over 100 Genetics Counselors well attended the
seminar, Organized by Board of Genetic Counseling India.

3rd march

Jaipur-organized unique symbolic Rare Disease Awareness Posters gallery at Kalaneri Art Gallery Jawahar
Lal Nehru Marg,display 100 rare diseases Posters, over 115 people well visited the Awareness gallery,
wonderful support by Organization For rare disease and other many parents Advocacy Group from India .

Great  News


WHO rolls out universal newborn screening implementation guidance in South-East Asia Region
 

Update

  Happy News
Niloufer Hospital in Hyderabad launches newborn screening programme to detect rare genetic conditions
Programme is designed to detect congenital hypothyroidism, congenital adrenal hyperplasia, glucose-6-phosphate dehydrogenase deficiency, galactosemia and biotinidase deficiency
https://www.thehindu.com/news/cities/Hyderabad/niloufer-hospital-in-hyderabad-launches-newborn-screening-programme-to-detect-rare-genetic-conditions/article67898900.ece

Please make  our country a better and safer place for Newborns.

 

 

Valid XHTML 1.0 Transitional Valid CSS!