Newsletter

Recent Activates

 Recent Activates from MERDIndia


-MERDIndia gave informative support to more than 15 people regarding IEM and NBS and rare Diseases.

2-Participated IN few Activates


22nd January 2025 at jaipur

We did activity at Mahila Chikitsalaya Sanganeri Gate jaipur with lion club jaipur Adarsh nagar and
uthhan trust and distributed 60 new woolens clothes to newborns, special thanks to Dr sunil gothwal, Dr
Vishnu Agarwal, MS madam ji and Hospital team for wonderful support

18th January 2025 at maysur

Participated in GAPIO seminar organized by Global Association of Physicians in Indian Origin and get
Award received for best Commendation Award at Hotel Radisson blue Plaza.

Met with Dr Deepa Bhatt from JSS Medical College and discussed rare diseases prospective in India.



4th January 2025 at jaipur

Participated as a panelist on Newborn Screening discussion on Samvad, organized by ISPAT and AGOS
jaipur,

Newbon screening discussion moderate by Dr Saurabh Dani ,other panelist were Dr Ram babu Agarwal, Dr
Vishnu Agarwal, Dr Priyanshu Mathur Dr Indira Lamba (Obs)and venue was hotel park prime.

3rd January 2025 at bikaner

we did activity at PMB HOSPITAL, at bikaner, 100 new woolens clothes distributions at nursery,

Excellent discussion with department of children, department of gynecologist for healthy children
healthy nation 
Thank you Dr Shyam agarwal, Dr kuldeep bitoo, Dr beniwal, Dr sarika Swami, and all PBM doctors and
other medical professionals for giving great support

Happy News

Budget 2025-26 | 36 drugs for cancer, rare diseases to be exempt from basic customs duty, says FM
Sitharaman
ET Online | 01 Feb 2025, 12:55 PM IST
Budget 2025 Health Announcements: Finance Minister Nirmala Sitharaman tabled the Budget 2025 on
Saturday. During her budget 2025 speech, Sitharaman announced that the government will promote medical
tourism and ease visa process under the Heal in India initiative. Medical tourism in India to be
promoted in partnership with private sector, she said during her speech. She also announced that 36
drugs for cancer, rare diseases to be exempt from basic customs duty. The Finance Minister also
informed that the government will exempt basic custom duty on 37 more medicines. Those suffering from
Cancer, chronic or other severe diseases; I propose to add 36 life-saving drugs and medicines to the
list of medicines fully exempted from basic customs duty, she said.

https://economictimes.indiatimes.com/news/india/budget-2025-26-36-drugs-for-cancer-rare-diseases-to-be-
exempt-from-basic-customs-duty-says-fm-sitharaman/videoshow/117822194.cms?from=mdr
Government of Rajasthan Portal for rare Disease
A-https://rajsambal.rajasthan.gov.in/Index.aspx
B-सम्बल योजना 2024. दुर्लभ बीमारियों से पीड़ित बालक/बालिकाओं को राहत देने के लिये मुख्यमंत्री आयुष्मानबाल सम्बल योजना की घोषणा की गई है,,
https://sje.rajasthan.gov.in/siteadmin/Uploads/202412171017148768.pdf
 

Update

Can be useful News
She thought her daughter’s sweet fragrance was a blessing; it turned out to be a deadly condition
https://www.straitstimes.com/singapore/her-sweet-smelling-baby-was-actually-very-sicknusual conditions
Preimplantation genetic testing for inborn errors of metabolism: observations from a reproductive
genetic laboratory in China
https://www.nature.com/articles/s10038-024-01307-9
 
 
The Ministry of Health and Prevention (MoHAP) has launched the National Newborn Screening Guidelines to
standardise and enhance the medical examination procedures for newborns across the country, aligning
them with international best practices.

Source -https://gulfnews.com/uae/health/uae-launches-national-newborn-screening-guidelines-1.103609850

 

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